Today, Work stream 1 collaborator Michael Bach appeared on Radio 4’s Today programme, raising his concerns about extending Canadian legalised medical assistance to die to cases where the condition in question is psychological. Link
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Radio 4’s Today Programme appearance
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A Mental Health Act Fit for Tomorrow
An Agenda for Reform Mental Health Alliance June 2017 “The Mental Health Act is not fit for purpose. We urgently call for a review of the Act, so that together we can protect the rights and improve care for some of the most vulnerable people in the health system.” Link
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Event: EUROsociAL+ Workshop & Seminar, Santiago
June 26th - 28th 2017 Jillian Craigie (Work stream 1) took part in a seminar and workshop in Santiago, Chile, reviewing draft law on legal capacity for people with mental disabilities, facilitated by the European Union EUROsociAL+ programme Further information
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Article 12: Equal recognition before the law
Committee on the Rights of Persons with Disabilities Eleventh session 31 March–11 April 2014 General comment No. 1 (2014) Article 12: Equal recognition before the law View or download the article
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United Nations: Human Rights Council Report of the United Nations High Commissioner for Human Rights
United Nations General Assembly Human Rights Council Thirty-fourth session 27 February-24 March 2017 Mental health and human rights Report of the United Nations High Commissioner for Human Rights View or download the article
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Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health
Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health View or download the article
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Guidelines on article 14 of the Convention on the Rights of Persons with Disabilities
Committee on the Rights of Persons with Disabilities Guidelines on article 14 of the Convention on the Rights of Persons with Disabilities The right to liberty and security of persons with disabilities View or download the article
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Article 19: Living independently and being included in the community
Committee on the Rights of Persons with Disabilities Draft General Comment No. 5 (2017) Article 19: Living independently and being included in the community View or download article
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Advances in Mental Health and Intellectual Disabilities
Is mental capacity in the eye of the beholder? The law, at least in England and Wales, divides adults [1] into those who have the mental capacity to make decisions and those who do not. This distinction is crucial, and underpins health and social care practice, not least as it answers the questions: (1) can
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Fluctuating capacity and advance decision-making in Bipolar Affective Disorder — Self-binding directives and self-determination
For people with Bipolar Affective Disorder, a self-binding (advance) directive (SBD), by which they commit themselves to treatment during future episodes of mania, even if unwilling, can seem the most rational way to deal with an imperfect predicament. Knowing that mania will almost certainly cause enormous damage to themselves, their preferred solution may well be
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Patricia Walsh
Research Network Workstream 1: Supporting Legal Capacity Lecturer in medical ethics, Dickson Poon School of Law, KCL. Pat will collaborate on research in WS1 on questions of identification with impairments and the implications for support, particularly in relation to the notion of neurodiversity. She will be a member of a Work Stream 1 advisory group.
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Sridhar Venkatapuram
Core member Workstream 2: Community Independence Lecturer in global health and philosophy, Department of Social Science, Health and Medicine, KCL. Sridhar has expertise in global health and policy and the capabilities approach. He will conduct research within Work Stream 2. Activity: Integration and beyond
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Elisa van der Plas
Workstream 5 Decision-making & Metacognition PhD student at the Wellcome Centre for Human Neuroimaging, University College London. Elisa has interests in decision neuroscience, metacognition and social decision-making. She will conduct research on WS5 under the shared supervision of Dr. Stephen Fleming and Professor Anthony David.
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John Stanton-Ife
Research Network Workstream 1: Supporting Legal Capacity Senior lecturer in law, Dickson Poon School of Law, KCL. John has expertise in criminal law and jurisprudence. He has particular interests in legal capacity in relation to consent to sex in both criminal and civil law, and will be part of the advisory group for Work Stream
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Paul Skowron
Workstream 1: Supporting Legal Capacity Postdoctoral Research Associate in Mental Health and Justice at York Law School. Paul has expertise in mental capacity law, especially in England and Wales. He will be involved in Work Stream 1, investigating the philosophical underpinnings of the CRPD and some of its potential implications.
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Nick Shea
Core member Workstream 5: Decision-making and Metacognition Professor of philosophy, Department of Philosophy, KCL. Nick has interests in philosophy of mind, social epistemology and metacognition. He will conduct research within Work Stream 5.
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Jennifer Rubin
Research Network Professor of public policy, King’s Policy Institute, KCL. Jennifer has expertise in delivering policy analysis. She will chair the policy labs at the King’s Policy Institute and lead on writing the policy document for Mental Health and Justice.
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Sherrilyn Roush
Core member Workstream 5: Decision-making and Metacognition Professor of philosophy of medicine, Department of Philosophy, KCL. Sherri has interests in philosophy of science, epistemology and philosophy of medicine (especially psychiatry). She will conduct research within Work Stream 5 and contribute widely across the research network.
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Larry Rifkin
Core member Workstream 3: Advance Directives Consultant psychiatrist Lambeth Home Treatment Team South London and Maudsley NHS Foundation Trust (SLAM) and visiting senior lecturer, KCL. Larry is a senior clinician in SLAM with expertise in affective disorder and crisis services. He will be clinical lead for the NHS implementation phase of Work Stream 3 as
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Genevra Richardson
Core member Workstream 2: Community Independence Professor of law at the Dickson Poon School of Law, KCL. Genevra has expertise in mental health law and policy. She will conduct research within Work Stream 2 and contribute widely across the research network.
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Ursula Read
Core member Workstream 2: Community Independence Postdoctoral research associate, faculty of life sciences and medicine, KCL. Ursula has expertise in ethnography, culture and mental health and severe mental illness in Ghana, West Africa. She will conduct research within Work Stream 2. MHJ publications Read UM 2019. Rights as relationships: collaborating with faith healers in community mental health
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Jodie Rawles
Work stream 1 Doctoral student in the Department of Psychiatry at the University of Cambridge. Jodie Rawles presents at University of Cambridge, 05 May 2024 Jodie Rawles presents at University of Nottingham, 05 September 2024 Ruhr University Bochum, 01 April 2024 MHJ Service User Group participation, 31 March 2024
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Gareth Owen
Principal Investigator Workstream 3 & 6: Advance Directives (WS3) & Contested Assessment (WS6) Clinical senior lecturer at the Institute of Psychiatry, Psychology and Neuroscience, KCL and honorary consultant psychiatrist. Gareth has expertise in mixed methods, psychiatric phenomenology, mental health, ethics and law as well as policy. He will lead on Work Stream 3 and Work
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Sabine Michalowski
Core member Workstream 4: Insight: Evidence & Objectivity Professor of law, University of Essex. Sabine has interests in medical law and human rights. She will conduct research within Work Stream 4.
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Andrew McWilliams
Workstream 5 Decision-making & Metacognition Clinical research fellow at King’s College London and the UCL Metacognition Lab, Andrew is a specialist registrar in child and adolescent psychiatry. He is interested in technology solutions to gamify tasks, improving the service user experience, as well as in designing tools which support capacity assessment.
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Matt Matravers
Core member Workstream 1: Supporting Legal Capacity Professor of law, University of York. Matt has expertise in philosophy of law and political philosophy. He will be particularly involved in the theoretical work of Work Stream 1, including postdoctoral supervision, and will be part of an advisory group for that work stream.
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Wayne Martin
Principal Investigator Workstream 4: Insight: Evidence & Objectivity Professor of philosophy and director of the Essex Autonomy Project, University of Essex. Wayne has interests in phenomenology, philosophy of psychiatry, qualitative methods and human rights and policy. He will lead on Work Stream 4 and the first policy lab on “evidence”. He will contribute widely across
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Catriona Mackenzie
Research Network Professor of philosophy, Macquarie University, Sydney. Catriona will be engaged in the development of theoretical work in Work Stream 1 relating to theories of relational autonomy and vulnerability.
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Oliver Lewis
Research Network Director Mental Disabilities Advocacy Center (MDAC) and Chair of Law and Social Justice, University of Leeds. Oliver has expertise in international human rights law. He will join the Work Stream 2 advisory group and will provide support with the work-stream’s legal analysis.
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Margot Kuylen
Workstream 4 Insight Final year PhD student in Philosophy at the University of Essex. Margot works with Wayne Martin on issues related to the research initiative, including the notions of choice and autonomy. Attends the monthly MHJ Research Network Meetings.
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Scott Kim
Core member Workstream 6: Contested Assessment Senior investigator, Department of Bioethics, National Institute of Health, USA. Scott has interests in decision-making capacity and methodological issues in empirical bioethics research. He will conduct research within Work Stream 6 and contribute widely across the research network.
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Hanna Kienzler
Principal Investigator Workstream 2: Community Independence Lecturer in the Department of Social Science, Health and Medicine at KCL. Hanna has expertise in ethnography and social and cultural aspects of community mental health including development contexts and regions affected by armed conflict. She has conducted long-term anthropological fieldwork in Palestine. Hanna will lead on Work Stream
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Alex Ruck Keene
Core member Workstream 3 & 6 Advance Directives (WS3) & Contested Assessment (WS6) Barrister at 39 Essex Street Chambers and visiting research fellow at the Dickson Poon School of Law, KCL. Alex has expertise in mental health and capacity law, policy and guidelines. He will work as a senior legal researcher on WS6. He will
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Nuala Kane
Core member Workstream 6: Contested Assessment Nuala is a CT3 Psychiatry on the Maudsley Training Programme and a Clinical Research Associate with the Mental Health and Justice project. She has a background in philosophy of psychiatry and clinical interests in liaison and older adult psychiatry. She is a Mental Health Research UK MD(res) scholar and
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Thomas Kabir
Research Network Lead, Public Involvement in Research (PIiR) programme, the McPin Foundation. Thomas has expertise in patient and public involvement in research. He will chair the service user research advisory group for the collaboration and lead on dissemination of the project for service user and carer groups. He will contribute widely across the research network
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Susan Hudson
Research Network Chief executive Bipolar UK. Susan runs the national charity dedicated to supporting individuals with Bipolar. She will help with research within WS3 particularly service user communications and guidelines for service users and carers.
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Francesca Happé
Research Network Professor of cognitive neuroscience, Institute of Psychiatry, Psychology and Neuroscience, King’s College London. Francesca has expertise in Autism and Asperger’s syndrome, social cognition and experimental neuroscience. She will be part of an advisory group for Work Stream 1.
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Sándor Gurbai
Work stream 4: Insight: Evidence & Objectivity Postdoctoral Research Assistant Senior research officer, University of Essex. Sándor has interests in human rights and disability studies. He will conduct research within Work Stream 4.
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Daniel Glaser
Research Network Director, The King’s Science Gallery, KCL. Daniel has expertise in public engagement. He will consult on the public engagement plan.
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Rita Giacaman
Research Network Professor at the Institute for Community and Public Health at Birzeit University, Palestine. Rita has expertise in psycho-social/mental health system building in war-like conditions, social epidemiology and mixed-methods studies on mental health, and disability rights. She will oversee the research conducted by Work Stream 2 in Palestine as detailed in her letter.
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Tania Gergel
Core member Workstream 3: Advance Directives Senior Research Fellow in the Department of Psychological Medicine, KCL. Tania has expertise in mental health, ethics and law, with areas of interest including: advance decision-making and decision making-capacity; the ethics of coercion and leverage within psychiatry; personhood and mental disorder; and stigma. She will work as co-lead on
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Michelle Funk
Research Network Coordinator of Mental Health Policy and Service Development, Human Rights and Legislation at the WHO and leads the WHO MIND project. She will join the advisory group for Work Stream 2 and assist with guideline development and dissemination.
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Steve Fleming
Core member Workstream 5: Decision-making & Metacognition Principal Research Associate, Wellcome Centre for Human Neuroimaging, University College London. Steve has interests in experimental neuroscience, metacognition and neuroscience and law. He will provide PhD supervision in WS5 and contribute to all aspects of that work-stream.
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Natalie Drew
Research Network Coordinator, mental health, human rights and legislation at WHO. Natalie also oversees the WHO QualityRights Project, which aims to assist countries to assess quality and human rights in mental health facilities. Natalie will join the advisory group of Work Stream 2 assisting with development of guidelines, training tools and dissemination.
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Anthony David
Principal Investigator Workstream 5: Decision-making & Metacognition Professor Anthony David, Director, Institute of Mental Health, University College London. Anthony has interests in experimental neuropsychology, neuropsychiatry, insight and decision-making capacity. He will lead on WS5 and contribute widely across the research network.
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Polona Curk
Research Affiliate. Executive research fellow, University of Essex. With a background in psychoanalytic theory, Polona is interested in relational autonomy. She will conduct research within WS4, on the concept of insight in psychoanalysis and comparisons with psychiatry.
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Jillian Craigie
Work stream 1 Enabling Legal Capacity Through Decision-Making Support. Lecturer in medical ethics, Centre for Medical Ethics and Law, Dickson Poon School of Law, KCL. Jill has expertise in mental health ethics, neuroethics and philosophical psychology. She will lead on WS1 and contribute widely across the research network.
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Winston Chiong
Core Member Workstream 5: Decision-making & Metacognition Associate Professor of Neurology at the University of California San Francisco. Winston has expertise in the neuroscience of dementia and decision-making as well as ethics. He will collaborate on experimental design in WS5 particularly neuroeconomic experiments.
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Isabel Clare
Core member Workstream 1: Supporting Legal Capacity Consultant clinical psychologist at the Cambridge Intellectual Disabilities Group and affiliated lecturer, Department of Psychiatry, University of Cambridge. Isabel has expertise in intellectual disabilities and autism, mixed methods research and mental health law. She will give PhD supervision in WS1 and be part of an advisory group for
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Matt Burch
Core member Workstream 4: Insight: Evidence & Objectivity Lecturer in philosophy, University of Essex. Matt works on issues at the intersection of phenomenology, action theory, and research in the cognitive and social sciences. At the moment, his research is focused in particular on the stance of objectivity in legal contexts, autonomy in mental health, risk
